This is the story of Kylo Loki and his journey with Type One Diabetes.

Kylo was diagnosed with Type One Diabetes (T1D) when he was 15 months old, after going into Diabetic KetoAcidosis (DKA) during a family holiday, resulting in a harrowing journey back to the UK, all the while Kylo was fighting for his life.

Kylo grinning in a pair of oversized aviator sunglasses
Diagnosis

Kylo was diagnosed at 15 months old, which is actually really rare. Most kids are diagnosed between about 4 and 7, or again in their early teens, and only a small number ever get diagnosed before they turn two. Being that young brought its own problems. A 15 month old can't tell you they're thirsty, or tired, or that something feels off, so all the warning signs an older kid could put into words just weren't there for us. That's a big part of why it gets missed so often at this age, until things get serious.

Kylo in a blue cap, splashing in a water fountain
Kylo on the beach in pineapple swim shorts, waving
Every day since

Since then it's all been on us. We're the ones reading the signs of highs and lows, working out carbs for a toddler who won't touch his dinner one night and wants three helpings the next, and trying to fit devices made for bigger kids. And he's not even old enough yet to understand what any of it means.

Follow us on our family journey, how we manage T1D, the highs and lows, and everything in between.

Coming this November

A 24-hour charity stream for Breakthrough T1D

For Diabetes Awareness Month, Kylo's dad Tom is gaming live for 24 hours straight on his channel, pobajobs, to raise money for Breakthrough T1D, the charity funding research into type 1 diabetes. The date is still to be confirmed, and we'll share how to donate closer to the time.

Latest from the journal

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Kylo's story The full story of what happened, from the holiday to diagnosis. What is T1D? Type One Diabetes explained simply, and the signs to look out for. Carb calculator Work out the carbs in a whole recipe, and per portion. Calendar Our pump, sensor and pen changes, all in one place.
As heard on the Juicebox Podcast Episode #1910: Dancing with the Devil Listen →
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